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Resources / Links

In this section:


GENERAL WEBSITE INFORMATION

AMERICAN CANCER SOCIETY (ACS) - http://www.cancer.org/  

AMERICAN SOCIETY FOR THERAPEUTIC RADIOLOGY AND ONCOLOGY (ASTRO) - http://www.astro.org/

BRAIN TUMORS - http://www.braintumor.org/

BREAST CANCER - http://www.komen.org/

BLADDER CANCER - http://www.bcan.org/

CANCER CARE - http://www.cancercare.org/

COLORECTAL CANCER ALLIANCE - http://www.ccalliance.org/

ESOPHAGEAL CANCER - http://www.ecaware.org/

KIDS KONNECTED - (800) 899-2866, http://www.kidskonnected.org/

LEUKEMIA AND LYMPHOMA SOCIETY - http://www.leukemia-lymphoma.org/

LUNG CANCER ALLIANCE - http://www.lungcanceralliance.org/

MULTIPLE MYELOMA - http://www.multiplemyeloma.org/

NATIONAL BRAIN TUMOR FOUNDATION (NBTF) - http://www.braintumor.org/

NATIONAL CANCER INSTITUTE (NCI) - http://www.cancer.gov/

NATIONAL PROSTATE CANCER COALITION - http://www.4npcc.org/

ONCOLINK - http://www.oncolink.org/

OVARIAN CANCER - http://www.ovariancancer.org/

PANCREATIC CANCER - http://www.pancan.org/

PROSTATE CANCER - http://www.4npcc.org/

SARCOMA FOUNDATION OF AMERICA - http://www.curesarcoma.org/

SKIN CANCER - http://www.skincancer.org/

SUPPORT FOR PEOPLE WITH ORAL & HEAD AND NECK CANCER, INC. (SPOHNC) - http://www.spohnc.org/

THYROID CANCER - http://www.thyca.org/


PUBLICATIONS AND WEBSITES FOR CAREGIVERS

AMERICAN CANCER SOCIETY - http://www.cancer.org/ 
1-800-ACS-2345

Caregiving:  How to Care for a Loved One with Cancer and Yourself
Caring for the Patient With Cancer at Home - A Guide for Patients and Familes
Coping:  A Checklist for Caregivers
Anxiety: A Checklist for Caregivers
Are You Depressed:  A Checklist for Caregivers

AMERICAN BRAIN TUMOR ASSOCIATION - http://www.abta.org/
1-800-886-2282

Factsheet:  Advice for Caregivers
Factsheet:  Care for the Caregiver
Booklet:  Orientation to Caregiving:  A Handbook for Family
Caregivers of Patients with Brain Tumors
    

CANCER CARE - http://www.cancercare.org/
1-800-813-HOPE

Factsheet:  Caring Advice for Caregivers:  How Can You Help Yourself
Factsheet:  What Can I Say to a Newly Diagnosed Loved One
Booklet:  Caregiving for Your Loved One with Cancer

NATIONAL CANCER INSTITUTE - http://www.cancer.gov/
1-800-For Cancer

Booklet:  When Someone You Love is Being Treated for Cancer
Booklet:  When Someone You Love Has Advanced Cancer - Support For the Caregiver


NATIONAL / STATE CAREGIVER AGENCIES

Los Angeles Caregiver Resource Center (LACRC)
Provides assistance to Caregivers of  Brain Injured Patients
lacrc@usc.edu
1-800-540-4442
    
Family Caregiver Alliance
www.caregiver.org
1-800-445-8106
     
National Family Caregivers Association
www.thefamilycaregiver.org
1-800-896-3650
   
Caregiver
www.caregiver.com
1-800-829-2734
      
Well Spouse Foundation
www.wellspouse.org
1-800-838-0879


PATIENT SUPPORT GROUPS*
(Open to the Community)


BRAIN TUMOR CAREGIVERS SUPPORT GROUP
 
      When:      Once a month (call for the dates)

      Time:        6:30 pm - 8:30 pm

      Where:     Radiation Oncology Conference Room
                      (200 Medical Plaza, Suite B265)

BREAST CANCER SUPPORT GROUP

      When:      4th Tuesday of the Month

      Time:        6:00 pm - 7:30 pm

      Where:     Radiation Oncology Conference Room
                      (200 Medical Plaza, Suite B265)

HEAD AND NECK CANCER SUPPORT GROUP

      When:      First  Tuesday of the Month

      Time:        6:30 pm - 8:30 pm

      Where:     Radiation Oncology Conference Room
                      (200 Medical Plaza, Suite B265)

YOGA/RELAXATION CLASS

      When:    Every Thursday

      Time:        10:30 pm - 11:30 pm

      Where:     Radiation Oncology Conference Room
                      (200 Medical Plaza, Suite B265)

*For additional information or sign-up, please contact Pamela Hoff, LCSW at 310-825-6134.


RESOURCES FOR YOUNG ADULTS
(18-40 Years of Age)

For any Interpreter/Translator Services needs, please contact us 1 week in advance prior to your appointment and arrangements will be made.

LOCAL SUPPORT GROUPS

1. Wellness Community, West Los Angeles
2716 Ocean Park Blvd., Suite 1040
Santa Monica, CA 90405
www.wellnesscommunity.org
310-314-2555

2. Wellness  Community, Pasadena (Closed Fridays)
200 E. Del Mar Blvd.
Pasadena, CA 91105
www.wellnesscommunity.org
626-796-1083

3. Wellness Community, Winnetka (San Fernando Valley/Satellite)
19725 Sherman Way
Winnetka 91306
www.wellnesscommunity.org
805-379-4777 or 818-407-1643

4. Teen Impact - Young Adults Group (20-30+)
Children's Hospital, Los Angeles
4650 Sunset  Blvd.
Los Angeles,  90027
info@teenimpactprogram.com
323-361-4660 
Meets:  Every second and fourth Monday of each month--except August, no groups.     

5. weSpark
13522 Ventura Blvd.
Sherman Oaks, CA 91423
www.wespark.org
818-906-3022 
Offers support and programs for cancer patients, their families and friends.

ONLINE SUPPORT GROUPS

1. Breast Cancer Network of Strength (Formerly known as Y-Me National Breast Cancer  Organization)     
www.breastcancernetworkofstrength.org
1-877-986-9472

2. Planet Cancer -Young Adults with Cancer
www.planetcancer.org 
Headquarters:
314 E. Highland Mall Blvd.,  Ste.306 
Austin, Texas 78752
512-452-9010
Online community for young adults with cancer. You must register to participate.

3. Imerman Angels
www.imermanangels.org
1-877-274-5529 
Imerman Angels connects a person fighting cancer, survivors, and caregiver with someone who is familiar with the same experience. 
The service is free and helps anyone touched by any type of cancer, any age, living anywhere in the world. One-on-one cancer support.

4. Pregnant With Cancer
www.pregnancywithcancer.org 
Support services, online community resources, forums and informational links for women diagnosed with cancer during pregnancyF

5. Young Adults Surviving Glioblastoma
www.yasg.com 
Social networking forum and bulletin board system helping to bring together young spouses of adults with cancer to share information, support and experience.  Online Forum and live chat services for young adults living with, through and beyond a diagnosis of glioblastoma .

6. Young Cancer Spouses
www.youngcancerspouses.org
Social networking forum and bulletin board system helping to bring  together young spouses of adults with cancer to share information, support, and  experiences.    

7.  Vital Options
www.vital options.org , www.youngadultswithcancer.org
800-477-7666 
The Group Room cancer talk radio show is a weekly call-in radio show where listeners can tune in live every Sunday from 1:00-3:00 pm, Pacific Time.

GENERAL INFORMATION

1.  Young Survival Coalition (YSC)
www.youngsurvival.org 
877-YSC-1011
Resource link is a peer-support network and information line that can  provide young women with breast cancer information, resources and a connection to other young women affected by breast cancer.  Check the Point of Contact Program.  FREE Guidebook  for Breast Cancer can be downloaded from the internet .

2.   I'm Too Young For This
www.imtooyoungforthis.org
877-735-4673
Motivates young adults affected by cancer to get busy living by celebrating the art of survivorship through the use of music, the arts, and
social media.

3.  Cancer Net
www.cancer.net/youngadults  or  www.asco.org
888-651-3038
Information from the American Society of Clinical Oncology

4. Cancer Care
www.cancercare.org 
e-mail: info@cancercare.org
1-800-813-HOPE (4673)
Cancer Care offers  online and telephone support groups for young adults and their partners and family members.  Cancer Care also offers individual counseling,  telephone education workshops and financial assistance. All services are  completely free of  charge.

5. Healthy & Ready to Work (HRTW)- National Center
www.hrtw.org
Healthy and Ready to Work is a resource for rights and techniques for teens and young adults entering the workforce or higher  education.

6. Lance Armstrong Foundation
www.laf.org
866-235-7205
The Foundation focuses its activities on survivor resources, support, scientific and clinical research grants.  LAF helps survivors face the cancer by helping them understand  what to expect from  the cancer experience and assists them in asking the  right questions.  
         
7. LaRue Foundation
www.laruefoundation.com
stefanie@laruefoundation.com
Advocacy for young women affected by breast cancer.

8. Livestrong Young Adult Alliance
www.livestrong.org
866-467-7205/877-236-8820
Lance Armstrong Foundation
P.O. Box 161150
Austin, TX 78716-1150
A coalition and leadership community of key voices in cancer advocating positive results for  young adults with cancer.

9. Look Good... Feel Better
www.lookgoodfeelbetter.org
800-395-5665
A free national program of the American Cancer Society dedicated to techniques to help restore appearance and self-image during cancer treatment.

10. Prepare to Live  (Resources for Young Adults Coping with Cancer)
www.preparetolive.org
Prepare to live (aka P2L) is a non-profit, charitable organization founded and managed by cancer survivors dedicated to using the power of the web and film to  build a Young Adult cancer community. 

11. Survivor Alert
www.survivoralert.org
937-767-1924
Survivor Alert is a nationwide awareness initiative offering information, links to many resources, and recommendations for action for young adult cancer survivors and  the  health professionals who treat them.

Karen Durgan
Survivor Alert--Outreach Coordinator
A Lion in the House
726 Xenia Ave.
Yellow Springs, OH 45387

12.  MaleCare
www.malecare.com
202-844-8369
Comprehensive online support resource for young men during cancer treatment.

13.  TEAM Survivor
www.teamsurvivor-la.org
310-477-8557
Team Survivor - Los Angeles
1223 Wilshire Blvd., Suite #570
Santa Monica, CA 90403
Los Angeles based group - provides a variety of free exercise and health education program (woman of all ages).

14.  Working Against Cancer
www.workingagainstcancer.org
626-914-2914 

Assists young cancer survivors (30 years and younger) by providing awards toward  academic and vocational education.  A candidate must be a cancer survivor or recently diagnosed with cancer, but does not need to be currently receiving treatment to qualify. 
                                                                            
15. Waitingroom
info@waitingroommagazine.com
310-612-4046
Waitingroom is the first national magazine to address the unique needs young adults.

SCHOLARSHIPS

1. American  Cancer Society Scholarships
Survivors of Childhood Cancer

The ACS will help with the cost of attending College. Call-1-800-ACS2345  or
1-800-877-1710, ext: 221 (CA Div. for scholarships).

2. Beyond the Cure Scholarship
www.beyondthecure.org 
800-532-6459
 
The National Children's Cancer Society offers college and vocational Scholarships to childhood cancer survivors. Through the Beyond the Cure Program, the NCCS will award stipends of up to $5,000 per academic year to survivors who have illustrated  the ability to overcome the difficult challenges of childhood cancer. 

Applicants must be 25 years of age or younger and have been diagnosed before 18. See criteria and application on website.

        3. Brian Morden Foundation 
        www.brianmordenfoundation.org
        800-997-7278

        Award for an individual scholarship is $1,000.  See website for details.

4. Carolyn's Compassionate Children Scholarship
info@ccc.scholarships.org
866-540-1392

Scholarship Program CCCpedia - a comprehensive database with over 3,000 scholarships for young adult cancer survivors cancer patients.

5. Friends of Scott Foundation
http://www.friendsofscott.org  
619-223-7268

       Offers two scholarships per year, one per semester, to cancer patients currently being treated or to cancer survivors.

6. Michael A. Hunter Memorial Scholarship
http://www.oc-cf.org 
949-533-4202

Award for an individual scholarship is $1000. Applicants should be a US Citizen. The Michael A. Hunter Memorial Scholarship provides two $5,000 scholarships to high  school seniors and college students who are leukemia patients or children of a non-surviving leukemia patient. Candidates must have a minimum GPA of 3.0 on a 4.0 scale and must be a resident of Orange County, California. Download application from website.

7. Susan Komen for the Cure College Scholarship Award Program
www.komen.org
877-465-6636

       Offers college scholarships. Must be no older than 25 years of age and be a US citizen.   Scholarships vary from  State to State.     

8. Tim and Tom Gullikson Foundation
www.gulliksonfoundation.org 
888-485-5457

        Awards college scholarships to individuals affected by a brain tumor.

9. National Children's Cancer Society 
www.nationalchildrenscancersociety.org 
800-532-6459

Offers scholarships for college and vocational school to childhood cancer survivors. They will award stipends up to $5000 per academic year to survivors who have illustrated the ability to overcome the difficult challenges of childhood cancer. See website.

10. The Pacific West Cancer Fund 
www.pacificwestcancerfund.org 
206-575-8553
Stephanie Cunningham, Donald Traver ( Fund Administers)
320 Andover Park East, Suite 250
Seattle, WA 98188

The Pacific West Cancer Fund provides $1,500 scholarships for cancer survivors  through 70 colleges and universities nationwide. For more information, contact the foundation or the Financial Aid Office at any college or university and they should be able to provide you information about this scholarship.

11. Ulman Cancer Fund for Young Adults 
www.ulmanfund.org
888-393-3863

        Two scholarships are open nationwide. One for nursing students and one For  young adult cancer survivors.

12. Working Against Cancer Scholarship Program
www.workingagainstcancer.org
626-914-2914

Assists young cancer survivors (30 years and younger) by providing awards toward  academic and vocational education.  A candidate must be a cancer survivor or recently diagnosed with cancer, but does not need to be currently receiving treatment to qualify.

13. National Collegiate Cancer Foundation
www.collegiatecancer.org
717-215-0943

The National Collegiate Cancer Foundation was established to provide Services and support to young adults whose lives have been impacted by cancer and who have continued with their education throughout treatment or after their  treatment. These $1,000 competitive awards will be judged on criteria set by foundation (see website).  Applicants must be between 18-35 years of age.

14. Patient Advocate Foundation's Scholarship for Survivors
www.patientadvocate.org
800-532-527

Patient Advocate Foundation will be offering ten (10) $3,000.00 scholarshipsthat will be awarded for the 2009-2010 school year.  Please see website for eligibility requirements.  Applicant must be under the age of 25 and a survivor/ current patient of cancer or a critical or life-threatening disease.

15. Pediatric Brain Tumor Foundation of the United States (PBTFUS)
www.pbtfus.org
800-253-6530

National Family Support Program Coordinator
Pediatric Brain Tumor Foundation of the United States
302 Ridgefield Ct.
Asheville, NC 28806

PBTFUS offers college scholarships for brain tumor survivors.  Please see website  for additional criteria or call directly to the foundation.

16. Ronald McDonald House Charities 
www.rmhc.org 
630-623-7048 

Offers scholarships to students who face limited access to educational and career opportunities.  Scholarships are for students living in the United States and living in areas where there are participating local chapters. Please check website.

17. Ryan Mullaly Second Chance A Scholarship Fund for Cancer Survivors             
www.ryan2chancefund.org
609-737-1800

Offers a $1,000 scholarship for cancer survivors who are US citizens diagnosed with cancer between the ages of 13 and graduation from high school and currently  age 22 or younger.  Please see website for additional qualification.

18. SAMFund: Surviving and Moving Forward
www.thesamfund.org
617-780-9606 

The SAMFund provides financial assistance to young adults as they move forward with their lives after cancer.  Survivors are empowered to achieve their educational, professional and personal goals.  Grants and scholarships provided by the SAMFund cover a wide range of post-treatment financial needs, such as (but not limited to): undergraduate and graduate tuition and loans, car and health insurance premiums, rent, utilities, current and residual medical bills, fertility-related expenses, gym memberships and transportation costs.  Applicants must be between 17 and 35, finished with active treatment and residents of the United States.  Application process is once a year, beginning a Letter of Intent phase in June. Please see website for details.

19. Cancer for College 
www.cancerforcollege.org
760-599-5096

        Awards scholarships to current and former cancer patients who are currently attending  either a four year accredited university and/or
        attending a junior college.

20. Cancer Survivors Fund
www.cancersurvivorsfund.org
281-437-7142

Scholarships are granted for college education of the cancer survivors. See website for eligibility requirements

21. Young Cancer Survivor Scholarship Program, California Division Office                 
www.youngcancersurvivor.org
800-877-1710

Please contact:
Victoria Hudson
510-893-7900, Ext. 223
Email: vhudson@cancer.org

OTHER RESOURCES

1. FinAid
www.finaid.org
724-538-4500
Provides an overview of financial aid options, scholarship listings.

2. AMERICORPS
www.Americorps.org
800-942-2677 
Americorps has three programs of community service. They require a ten month to year full-time commitment and will then award an educational grant for schooling or repaying student loans.

3. SIBLINGS Scholarship 
If you have a brother(s) or sister(s) let them know about the agency below:

       SuperSibs Scholarship for Siblings 
       www.supersibs.org

       SuperSibs!
       5005 Newport Drive, Suite 502
       Rolling Meadows, IL 60008

Supersibs - a nonprofit organization whose mission is to honor, support and recognize the brothers and sisters of children with cancer.  Mamme Family Foundation Scholarships is offered to graduating high school seniors. To qualify, applicants must be a sibling of a child who  has (or has had) cancer, live in the United States and be a graduating high school senior,  and must be attending an accredited educational institution.  

FINANCIAL

1. Andre Sobel River of Line Foundation
www.andreriveroflife.org
310-276-7111

When no other resources are available, social workers at our affiliated children's hospitals  send us urgent requests on behalf of single parent families in financial crisis.  We respond immediately and without additional paperwork, because their social workers have already verified their need. The variety of requests range from essentials such as food, transportation, utilities, and medications not covered by insurance to funds  to protect a family from eviction or foreclosure.

2. Beckstrand Cancer Foundation 
www.beckstrand.org 
949-955-0099

To be considered for assistance, you must be a US citizen, live  Orange  County, been diagnosed with cancer within the past year or have on-going cancer, and currently undergoing, or have just completed treatment within the past two years months.  Funding is based on financial need.  See website for application and  eligibility information.

3. Cancer Care
www.cancercare.org
800-813-hope

Agency offers limited grants for expenses such as transportation, medication co-pays, home and child care.  Based on financial need.

4. Brenda Mehling Cancer Fund 
www.bmcf.net 
877-774-7768

Supporting patients  18-40 currently undergoing cancer treatment by covering services to meet daily needs, such as co-payments, health 
expenses, rent, insurance, etc.  Please call to check availability of funds or check website, click Apply for Assistance.

5. Cameron Siemers Foundation for Hope
www.cameronsiemers.orglife-grants 
877-774-7768 

Offers life grants to young adults between the ages of 18 and 28 and have been diagnosed  with a life-threatening illness, you can apply for a Life Grant. A Life grant  is a  $5,000 award to be used in the fulfillment of a dream, goal, or project that you take on  to  make a difference in your life and the lives of others.

6. Nicki Leach Foundation
www.nickileach.org
904-304-8531

Provide high school and college age students (age 16 -25) with cancer the opportunity to enjoy normal or extraordinary activities they might otherwise not be able to afford. They provide necessary funding which might include car expenses, clothing, help with the purchase of a special trip, a camera, a computer or a new cell phone. Their goal is to help with the things you would not normally ask for but would love to receive.

7.  Leukemia & Lymphoma Society 
http://www.lls.org  
800-955-4572 

Offers financial assistance through two programs:
A.  Patient Aid -up to $500 per fiscal year for co-pays for medications used for treatment of CNS lymphoma or related side -effects and conditions such as anemia, nausea, pain, depression and infection.

B.  Co-pay Assistance Program up to $1,000 per calendar year for medical or medication co-pays and insurance premiums.

8. Rise Above IT (RAI)
http://www.raibenefit.org 

Rise Above It (RAI) provides consultation and financial assistance to Adolescent and Young Adult (AYA) cancer patients; specifically 
those undergoing or pursuing clinical trial treatment  options.  Potential grant recipients  must meet the following criteria to become beneficiaries of RAI. 

A.  The patient was between the age of 15 and 39 at the time of diagnosis 
B.  The  patient is undergoing or actively pursuing Phase I, II, or III Clinical Trial treatment option.

       Please see website for additional criteria.

9. Co-payment Assistance Programs:

These organizations offer co-payment and sometimes other financial assistance for patients with certain diagnoses. The list of diagnoses served by each organization may change over time.  Income guidelines also vary.

        Health Well Foundation   1-800-675-8416 
        www.healthwellfoundation.org

        Patient Advocated Foundation   1-866-512-3861 
        www.copay.org

        Patient Access Network Foundation  1-800-316-7263 
        www.patientaccessnetwork.org

        Patient Services Inc. (PSI)   1-800-366-7741
        www.uneedpsi.org

STATE AND FEDERAL PROGRAMS

1.  State Disability Insurance Program
www.edd.ca.gov
800-480-3287

Income for people who are unable to work because of an injury or disability (not related to work) and have recently paid into the system through "SDI" payroll deductions.

2. Social Security Disability Insurance
www.ssa.gov/disability
800-772-1213

This program provides disability income for people who anticipate being unable to work for at least a full year.  Eligibility and monthly benefits are based on a person's recent work history and their contributions to the system through payroll taxes (FICA) on earnings. As a general  rule, a person must have worked at least 5 years of service.  The SSA accounts for a person's work history in "credits" or "quarters."  Applications are easily initiated by calling the toll free number or can be submitted via the website.

FERTILITY

1.  Fertile Hope 
www.fertilehope.org

Infertility is a side effect of some cancers in men and some cancer treatments for both men and women. For young cancer patients, it can be especially difficult to confront  the  risks of infertility at the same time as undergoing lifesaving treatment.

2. California Cryobank, Inc.
www.cryobank.com 
866-9-cryobank, 800-977-3761 or 310-443-5259
11915 La Grange Ave.
Los Angeles, CA 90025

        Provide information on sperm/egg banking/storage.

3. The National Infertility Association
www.resolve.org 
Helpline for Southern California:  877-203-7773

        Main Office 
        The National Infertility Association 
        1760 Old Meadow Rd., Suite 500 
        McLean, VA 22102 
             
        National infertility information advocacy and support organization for those facing fertility issues.

4.  American Society of Clinical Oncology
Patient Site
http://www.resolve.org
888-651-3038
ASCO in 2006 published guidelines regarding fertility preservation in cancer patients. To access information, type the words "fertility preservation" in into the search box.

5. Oncofertility Consortium
www.myoncofertility.org
866-708-3378

This national consortium, support by an NIH grant for interdisciplinary research, is focused on medical, financial, and other aspects of reproductive options for Cancer patients and survivors as well as parents of young patients.

CAMPS

1. First Descents 
www.firstdescents.org 
970-845-8400
First Descents 
P.O. Box2193
Vail, CO 81658
 
First Descents provides whitewater kayaking and other outdoor adventure experiences to promote emotions, psychological and physical healing for young adults with cancer.
     
2. Camp Make-A-Dream
www.campdream.org
406 549-5987
Children's Oncology Camp Foundation
P.O. Box 1450
Missoula, MT 59806

Camp provides cost-free camp programs to children and young adults.  Adult Cancer  Retreats are open to women of all ages (18+) who have either completed treatment  or are currently in treatment for cancer.  The Ovarian Cancer Retreat is open to  women diagnosed with Ovarian Cancer specifically (any stage), while the Women's Cancer  Retreat is open to women with any cancer diagnosis.  While the camp is cost-free,  participants are responsible for the airfare to Missoula, Montana. The camp  has a Young Adult Conference and a Young Survivors Conference.  Please contact Camp  Make-A-Dream for more information.

3. Teen Impact
information@teenimpactprogram.com
323-361-4660

       Three-Day Retreat - Southern California Area through Children's Hospital for teens and young adults.

       Children's Center for Cancer & Blood Diseases
       Children's Hospital Los Angeles 
       4650 Sunset Blvd., #99 
       Los Angeles, CA 90027


4. The Minnie Pearl Cancer Foundation
www.minniepearl.org
susan@minniepearl.org or adele@minniepearl.org
615-467-1936

A weekend retreat for Young Adult Cancer Survivors (Ages 20-35).  Retreat is located in Centerville,Tenn. The retreat is free of charge, except transportation to costs, to young adult cancer survivors from any location and at any stage of survivorship.  For more information, contact camp directly.

5. Cancer Hope Foundation - Camp Keepsake 
www.cancerhopefoundation.org 
805-384-5445

Camp is available for adults 18+, and includes 5 guests (friends or family members). This cost-free camp is held in Calabasas. Invitations to attend Camp Keepsake are based upon completed applications and review by the selection committee.  Transportation will be patient's responsibility.

RESOURCE DIRECTORIES

1. National Brain Tumor Society
1-800-934-2873
www.braintumor.org
On-line resource directory

2. Cancer Care
1-800-813-HOPE
www.cancercare.org
Free Booklet:  A Helping Hand: The Resource Guide for People with Cancer 


BOOK LIST

WHEN A PATIENT HAS CANCER
(Free Publications)

For Parents

  • Helping Children When a Family Member has Cancer, (800) 813-HOPE (4673), Cancer Care
  • Helping Children Understand Cancer: How to Talk to Your Children About Your Cancer Diagnosis (Fact Sheet), (800) 813-HOPE, Cancer Care
  • Helping Teenagers When a Parent Has Cancer (Fact Sheet), (800) 813-HOPE, Cancer Care
  • A Guide to Helping Your Child Cope with Cancer in the Family, (310) 314-2555, The Wellness Community
  • What's Happening to Mom? Helping Children Cope with Breast Cancer, Susan G. Komen Foundation, (877) 745-7467.

For Children

For Teens

  • What About Me? A Booklet for Teenage Children of Cancer Patients, by Linda Leopold Strauss. 
    (513) 731-3346, Cancer Family Care, CINCINNATI, OH.
  • When Your Parent Has Cancer, (800) 422-6237, National Cancer Institute, (NIH Publication No. 05-5734)

GENERAL BOOK LIST

For Parents

  • Can I Still Kiss You?, by Neil Russell: Answering Children's Questions About Cancer, 2001
  • Cancer In the Family, by Sue P. Heiney, PhD, RN; Joan F. Hermann, MSW, LSW; Katherine V. Fincannon, RN, MS: Helping Children Cope with a Parent's Illness, 2001
  • Helping Your Children Cope with Your Cancer: A Guide for Parents and Families, by van Dermoot, Peter, 1986
  • How to Help Children Through a Parent's Serious Illness, by Kathleen McCue, MA and Ron Bonn, 1996
  • Raising an Emotionally Healthy Child:  When a Parent is Sick, by Rauch, Paula K., 2005
  • Serious Illness: Children Can Learn to Cope With Loss and  Change, by Marage Heegard, 1992.
  • What About My Kids?: A Guide for Parents Living with Breast Cancer, by Linda Corsini, 2002
  • When A Parent Has Cancer, by Dr. Wendy Schessel Harpham: A Guide to Caring for Your Children, 1997
  • When a Parent is Seriously Ill: Practical Tips for Helping Parents and Children, by Collins, Leigh & Nathan Courtney, 2003
  • When a Parent is Sick: Helping Parents Explain Serious Illness to Children, by Hamilton, Joan, 2000
  • We Can Cope: Helping Parents Help Children When a Parent Has Cancer. Brombert J. and McCabe, D.C., 2001
     

For Children

  • Becky and the Worry Cup, by Harpham, Wendy S. and Kulikaoskas, Jonas, 1997 ( ages 9-12)
  • Can I Still Kiss You, Neil Russell, 2001 (ages 5-10)
  • Cancer: the Whispered Word, by Swenson, Judy H., 1986 (ages 8-14)
  • Ida B: and Her Plans to Maximize Fun, Avoid Disaster and (Possibly) Save the World, by Hannigan, Katherine, 2004 (ages 9-12)
  • In Mommy's Garden: A Book to Help Explain Cancer to Young Children, by Ammary, Neyal J., 2004 (ages 4-7)
  • Kids Speak Out About Breast Cancer, by Numeroff, Laura, 1999 (ages 3 -10)
  • Life Isn't Always a Day at the Beach, by Ganz High Five Publishing, 1996 (ages 5 - 12)
  • Mommy's in the Hospital Again, by Parkinson, Carolyn, 1996 (ages 4 - 7)
  • Mom's Don't Get Sick, by Pat Brack, 1990 (ages 3 to 13)
  • My Daddy's Cancer: An Interactive Book for Children. Cohen, Cindy K., 1999 (ages 4 - 7)
  • My Mommy Has Cancer, by Parkinson, Stearns Carolyn, 1991 (ages 4 - 7)
  • My Mummy is Sick: A Story about Breast Cancer, by Madill, Fani, 2001
  • Once Upon a Hopeful Night, by Risa S. Yaffe, 1998 (ages 3 to 10)
  • Our Family Has Cancer Too!, by Christine Clifford and Lindstrom, Jack, 1998 (ages 3 -16)
  • Our Mom Has Cancer, by Ackermann, Abigail & Adrienne, 2001 (ages 5 - 12)
  • Promises, by Winthrop, Elizabeth, and Betsy Lewin , 2000
  • Sammy's Mommy Has Cancer, by Kohlenberg, Sherry and Crow, Lauri, l993 (ages 3 - 8)
  • Someone I Really Love Has Cancer, by Dana Cohn & L. E. Murray (ages 3 to 10)
  • The Hope Tree: Kids Talk About Breast Cancer, by Numeroff, Laura Harpham, Wendy and McPhail M., 2008 (ages 5-8)
  • The Paper Chain, by Blake, Blanchard & Parkinson (800) 643-2665, 1997 (ages 4 to 10)
  • The Year My Mother was Bald, by Speltz, Ann, 2003 (ages 8-13)
  • Tickles Tabitha's Cancer - Tankerous Mommy, by Frahm, Amelia, 2001 (ages 4 - 12)
  • Time for Me: An Activity Book for Kids When Someone in the Family Has Cancer, by Slakov, June, 2004
  • Vanishing Cookies: Doing OK When a Parent Has Cancer, by Goodman, Michelle B., 2990 (ages 10-16)
  • We Can Cope: Helping Parents Help Children when a Parent Has Cancer, by Brombert, J and McCabe, D.C.,2000
  • What is Cancer Anyway? Explaining Cancer to Children of All Ages, by Carney, Karen L. , Barklay, Eve, 1999 (ages 4-8)
  • When Eric's Mom Fought Cancer, by Vigna, Judith, 1993 (ages 4-8)
  • When I Feel Afraid, by Meiners, Cheri J., 2003
  • When Mama Wore a Hat, by Schick, Eleanor, 2007 (ages 4-7)
  • When Mommy Had a Mastectomy, by Greenfield Reuben, Nancy, 2004
  • When Mommy is Sick, by Sherkin-Langer, Ferne, 1995
  • Where's Mom's Hair?: A Family Journey through Cancer, by Watters, Debbie, et al 2005
    (ages 5-10)

For Teens

  • Both Sides New, Pennebaker, Ruth, 2000
  • Will I Get Breast Cancer?: Questions and Answers for Teenage Girls, by Carole Vogel (1995)
  • Mom's Cancer, Fies, Brian, 2006 (teenagers and older children)
  • What's Happening to Mom? Helping Children Cope with Breast Cancer, Susan G. Komen 

Helpful Websites


TRANSPORTATION  INFORMATION

ACCESS Paratransit: 1 -800-827-0829
www.asila.org/accessparatransit/index/html
Curb-to-curb service for disabled persons in Los Angeles County who are unable to use accessible bus service.  An in-person Interview required to determine eligibility.  Application process takes about a month.  Transportation is available to the application appointment.

Cityride (310) 808-7433 or (213) 808-7433 or (818) 808-7433 or (323) 290-2060
www.ladottransit.com/other/cityride/
Transportation program for senior citizens or disabled of any age who are residents of the City of Los Angeles.  Call above numbers to apply for service - takes two weeks to process requests.  Transportation "scrip" may be purchased quarterly. Please call or go on the website for further information.

American Cancer Society 800-ACS-2345
http://www.cancer.org/
The American Society may assist ambulatory cancer patents with limited transportation to medical appointments.

Beverly Hills Shuttle (310) 275-02791
http://www.beverlyhills.org/
Must be Beverly Hills resident aged 62 and over, or disabled.  Need to send a copy of a picture ID and proof of residency to:

MV Transportation
405 S. Hewitt St.
Los Angeles, CA 90013
or Fax to (213) 253-265l
Requires advance reservations.  Shuttle bus runs from 9:00 am to 3:30 p.m.

Fairfax/LaBrea Area:  Freda Mohr Senior Center (323) 932-1474 
Call for an application.  Requires 2 weeks advance notice for UCLA appts.  Must be 65+ or disabaled.  Must live in the service area.

Malibu Dial-a-Ride Program (310) - 456-2489
http://www.ci.malibu.ca.us/
Must be a resident of Malibu, 60 years of age or older or of any age if disabled.  You must register at the Malibu Senior Center located at Malibu City Hall.

Santa Monica:  Wise Senior Services Dial-A-Ride Program (310) 394-9871
Van service for Santa Monica senior and disabled residents who register with the program.  Service to UCLA only on Tuesday and Thursdays.

West Hollywood Dial A Ride 1-800-447-2189
Free van service for W. Hollywood senior or disabled residents.  May call up to two weeks in advance to schedule rides to medical appointments.

West Los Angeles:  Felicia Mahood Senior Center (310) 231-0369
Call for an application.  Must be a senior citizen or disabled.  General boundaries of service area are:  West of Overland; South of Sunset; north of Washington/Venice; East of Centinela

Metropolitan Transit Authority - MTA (800) 266-6883
http://www.smart-traveler.com/ or http://www.mta.net/


LODGING INFORMATION NEAR UCLA

UCLA Tiverton House (310) 794-0151
http://www.tivertonhouse.ucla.edu/

UCLA Guest House (310) 825-6108
http://www.hotels.ucla.edu/

List of hotels, apartments and RV Parks not affiliated with UCLA
www.uclahealth.org/body.cfm?id=116&oTopID=42